Retinitis Pigmentosa
National Organization for Rare Disorders, Inc.
Skip to the navigation
General Discussion
Retinitis pigmentosa (RP) comprises a large group of inherited vision disorders that cause progressive degeneration of the retina, the light sensitive membrane that coats the inside of the eyes. Peripheral (or side) vision gradually decreases and eventually is lost in most cases. Central vision is usually preserved until late in these conditions. Some forms of RP can be associated with deafness, obesity, kidney disease, and various other general health problems, including central nervous system and metabolic disorders, and occasionally chromosomal abnormalities.
Supporting Organizations
American Council of the Blind
- 2200 Wilson Boulevard
- Suite 650
- Arlington, VA 22201
- Tel: (202)467-5081
- Fax: (202)465-5085
- Tel: (800)424-8666
- Email: info@acb.org
- Website: http://www.acb.org/
American Foundation for the Blind
- 2 Penn Plaza
- Suite 1102
- New York, NY 10121
- Tel: (212)502-7600
- Fax: (888)545-8331
- Tel: (800)232-5463
- Email: afbinfo@afb.net
- Website: http://www.afb.org
American Printing House for the Blind
- 1839 Frankfort Avenue
- P.O. Box 6085
- Louisville, KY 40206-0085
- USA
- Tel: (502)895-2405
- Fax: (502)899-2274
- Tel: (800)223-1839
- Email: info@aph.org
- Website: http://www.aph.org
Association for Retinopathy of Prematurity and Related Diseases
- 39650 Orchard Hill Place
- Novi, MI 48375
- Tel: (248)319-0161
- Fax: (248)788-4589
- Tel: (800)788-2020
- Email: ropard@yahoo.com
- Website: http://www.ropard.org
Blind Children's Center
- 4120 Marathon Street
- Los Angeles, CA 90029-3584
- USA
- Tel: (323)664-2153
- Fax: (323)665-3828
- Tel: (800)222-3566
- Email: info@blindchildrenscenter.org
- Website: http://www.blindchildrenscenter.org
Curing Retinal Blindness Foundation
- PO Box 8909
- Warner Robbins, GA 31095
- Email: curingretinalblindness@gmail.com
- Website: http://crb1.org
Foundation Fighting Blindness
- 7168 Columbia Gateway Drive, Suite 100
- Columbia, MD 21046
- Tel: (410)423-0600
- Fax: (410)872-0574
- Tel: (800)683-5555
- Email: info@FightBlindness.org
- Website: http://www.blindness.org/
Foundation Fighting Blindness (Canada)
- 890 Yonge Street, 12th Floor
- Toronto, Ontario, M4W 3P4
- Canada
- Tel: 4163604200
- Fax: 4163600060
- Tel: 8004613331
- Email: info@ffb.ca
- Website: http://www.ffb.ca
Genetic and Rare Diseases (GARD) Information Center
- PO Box 8126
- Gaithersburg, MD 20898-8126
- Tel: (301)251-4925
- Fax: (301)251-4911
- Tel: (888)205-2311
- Website: http://rarediseases.info.nih.gov/GARD/
NIH/National Eye Institute
- 31 Center Dr
- MSC 2510
- Bethesda, MD 20892-2510
- United States
- Tel: (301)496-5248
- Fax: (301)402-1065
- Email: 2020@nei.nih.gov
- Website: http://www.nei.nih.gov/
National Association for Parents of Children with Visual Impairments (NAPVI)
- P.O. Box 317
- Watertown, MA 02272-0317
- Tel: (617)972-7441
- Fax: (617)972-7444
- Tel: (800)562-6265
- Email: napvi@perkins.org
- Website: http://www.napvi.org
National Federation of the Blind
- 200 East Wells Street
- at Jernigan Place
- Baltimore, MD 21230
- USA
- Tel: (410)659-9314
- Fax: (410)685-5653
- Email: nfb@nfb.org
- Website: http://www.nfb.org
Perkins School for the Blind
- 175 North Beacon Street
- Watertown, MA 2472
- Tel: (617)924-3434
- Fax: (617)926-2027
- Email: Info@Perkins.org
- Website: http://www.Perkins.org
Recording for the Blind and Dyslexic
- 20 Roszel Road
- Princeton, NJ 8540
- Fax: (609)987-8116
- Tel: (800)221-4792
- Email: custserv@rfbd.org
- Website: http://www.rfbd.org/
Retina International
- Ausstellungsstrasse 36
- CH-8005
- Z rich,
- Switzerland
- Tel: 410444441077
- Fax: 410444441070
- Email: christina.fasser@retina-international.org
- Website: http://www.retina-international.org
Retinitis Pigmentosa International
- P.O. Box 900
- Woodland Hills, CA 91365
- Tel: (818)992-0500
- Fax: (818)992-3265
- Tel: (800)344-4877
- Email: info@rpinternational.org
- Website: http://www.rpinternational.org
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
Last Updated: 8/2/2012
Copyright 2012 National Organization for Rare Disorders, Inc.
