Idiopathic Neonatal Hepatitis

Disorder Subdivisions

• None

General Discussion

"Neonatal hepatitis" is a general term used to denote injury to the liver that occurs shortly after birth. Neonatal hepatitis may be caused by viruses, metabolic disease or genetic disorders, as well as other rare diseases that affect or impair the function of the liver. In some children, the cause of liver injury is unknown - these cases are referred to as idiopathic neonatal hepatitis (INH). The symptoms of idiopathic neonatal hepatitis may vary greatly from one individual to another. Symptoms common to liver disease often occur including yellowing of the whites of the eyes and the skin (jaundice), enlargement of the liver (hepatomegaly) and unusually dark urine. Most individuals with idiopathic neonatal hepatitis fully recover from the condition; however, some will progress to chronic liver disease.

Supporting Organizations

American Liver Foundation

39 Broadway, Suite 2700

New York, NY 10006

USA

Fax: (212)483-8179

Tel: (800)465-4837

Email: http://www.liverfoundation.org/contact/

Website: http://www.liverfoundation.org

British Liver Trust

2 Southampton Road

Ringwood, BH24 1HY

United Kingdom

Tel: 1425481320

Fax: 1425481335

Tel: 8006527330

Email: info@britishlivertrust.org.uk

Website: http://www.britishlivertrust.org.uk

CORE

3 St. Andrews Place

London, NW1 4LB

United Kingdom

Tel: 2074860341

Fax: 2072242012

Email: info@corecharity.org.uk

Website: http://www.corecharity.org.uk

Canadian Liver Foundation

3100 Steeles Avenue East Suite 801

Markham Ontario, L3R 8T3

Canada

Tel: 4164913353

Fax: 9057521540

Tel: 8005635483

Email: clf@liver.ca

Website: http://www.liver.ca

Childhood Liver Disease Research and Education Network

c/o Joan M. Hines, Research Administrator

Children's Hospital Colorado

Aurora, CO 80045

Tel: (720)777-2598

Fax: (720)777-7351

Email: joan.hines@childrenscolorado.org

Website: http://www.childrennetwork.org

Children's Liver Disease Foundation

36 Great Charles Street

Birmingham, B3 3JY

United Kingdom

Tel: 1212123839

Fax: 1212124300

Email: info@childliverdisease.org

Website: http://www.childliverdisease.org

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126

Gaithersburg, MD 20898-8126

Tel: (301)251-4925

Fax: (301)251-4911

Tel: (888)205-2311

Website: http://rarediseases.info.nih.gov/GARD/

Hepatitis Foundation International

504 Blick Drive

Silver Spring, MD 20904

Tel: (301)622-4200

Fax: (301)622-4702

Tel: (800)891-0707

Email: hfi@comcast.net

Website: http://www.hepatitisfoundation.org

March of Dimes

1275 Mamaroneck Avenue

White Plains, NY 10605

Tel: (914)997-4488

Fax: (914)997-4763

Email: AskUs@marchofdimes.org or preguntas@nacersano.org

Website: http://www.marchofdimes.org and nacersano.org

NIH/National Institute of Diabetes, Digestive & Kidney Diseases

Office of Communications & Public Liaison

Bldg 31, Rm 9A06

Bethesda, MD 20892-2560

Tel: (301)496-3583

Email: NDDIC@info.niddk.nih.gov

Website: http://www2.niddk.nih.gov/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

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This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  1/28/2014
Copyright  2014 National Organization for Rare Disorders, Inc.